The Association of Rare Diseases D'Genes has brought the reality of the rare pathologies to students and professors of the CEIP San Cristóbal de Aledo. The president of D'Genes, Juan Carríón, has visited this educational center this week where he has offered students talks adapted to the different levels in which he has explained what are rare diseases.
He also informed them about what D'Genes is and the work that the association is doing to improve the quality of life of people and families who live with rare diseases or lack a diagnosis of their pathology.
During the sessions she also shared with the children the story "Federico's Story: The Four Leaf Clover", a story promoted by the Spanish Federation of Rare Diseases (FEDER) whose objective is to advance the positive image of people with illnesses rare and work on the inclusion of children in their educational environment and in their leisure time.
The story of Federito seeks to sensitize the little ones about the importance of respecting individual differences and normalizing the image of rare diseases among children.
In addition, the doll of Mickey with the logo of D'Genes has also visited the center, which is part of the Solidarity Illusion program that the Peña Barcelonista de Totana develops in collaboration with the D'Genes and AELIP associations and to the benefit of these two entities.
This activity of raising awareness and approaching rare diseases in the educational field was carried out within the framework of the collaboration agreement between the City Council of Aledo and D'Genes.